REASON FOR TREATMENT: Tatyanna was born a normal and strong baby in 2004. She developed normally and even early in some cases and was a lively child who liked to play, laugh, run around and snuggle. In 2007, her parents Janelle and Trenton noticed that something was wrong. She was becoming increasingly clumsy and would fall without provocation. After an EEG was conducted, it was concluded that she was having seizures. More tests were conducted and medications tried until at last in 2008, Tatyanna was diagnosed with Batten's Disease
BEGINNING OF TREATMENT: April 9th, 2008
TREATMENT: 4 Cell Therapy injections via lumbar puncture + nutritious Cell Therapy cocktail treatment (intravenous).
CONDITION BEFORE THE TREATMENT:
See Videos: before1, before2, before3
Tatyanna is a playful and happy little girl who likes to play with her sister. On arrival in Beijing she was still able to move around, run and play, but her balance and coordination was effected so that her movements were a little awkward and she would often fall over.
One of the main concerns was that Tatyanna would suffer from constant seizures, effecting her concentration and focus. Constant seizures are also dangerous in that they can cause brain damage and controlling them meant she had to be on medications.
Tatyanna could not talk but could make sounds and tried to talk at times.
Tatyanna found it difficult to eat and swallow and her parents finally had to begin giving her supplements in order for her to receive all the nutrition she needed.
AFTER THE TREATMENT:
See Videos: after1, after2
During her stay in China, Tatyanna's parents noticed that she had some improvements in her speaking. She would talk more although she still had trouble pronouncing words. Her mother writes, "We have also noticed some differences in her speech and desire to try talking. While the quality of her language has a long way to go, the quantity has shown increases. She's also started to regularly predict what happens next in movies showing that she is able to remember details and then verbalize them later."
Her parents also noted that she was eating more and chewing and swallowing properly making it easier for her to get all the nutrients she needed. She was not only finishing her food, but also asking for more and in the words of her mother Janelle, "Now, she will finish her food and then move on to whoever happens to be sitting next to her. "
Tatyanna continues to do well and has now started school. Her parents are hopeful that her progress will continue and are planning a possible return to China in 2009.
For More information and updates on how she is doing, read Tatyanna's great blog at: www.tatyannashope.ca.
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